Hello Blog land! Today is:
WORLD Down Syndrome Day!
You know, March 21 – 3/21 – because individuals with Down syndrome have 3 copies of their 21st chromosome.
The world is a better place because you are in it, Piper! (And you, too, Addy, of course!)
Robbie Marie (aka Nana!)
I HATE the word retard! No matter HOW you use it! Even when it is used it to describe someone jokingly – it HURTS.
Please don’t use it flippantly.
Please don’t use it to describe MY granddaughter. Yes, she has Down syndrome, but she has just as much to a fulfilling life as you and I do!
NO, she does NOT suffer! Not at all!
This video is as cute as can be; take a look and promise you won’t use the R-word, or stand by as others around you do.
Thank you! This means a lot to me! It IS a big deal!
Piper’s nana, Robbie Marie
Ha, Aimee just sent me this link to a magazine article, can you find Piper?
Yup, that little girl in the red dress is our little Piper!
The picture came out in 303 Magazine article called Miss BeFit K& the MHDSA Holiday Party written by Kailey Anderson on Dec 15, 2011. Boy did Piper have fun! (MHDSA = Mile High Down Syndrome Association)
Merry Christmas, little one!
Nana
If, by chance, you do not follow my daughter’s blog, you simply HAVE to see it today! You can check it out HERE. Aimee and Luke took their little girls to the annual Mile High Down Syndrome Christmas party last Saturday and Aimee has pictures and a video up on the blog.
Okay, I’m prejudice, but golly my granddaughters are actual dollies! Here is a sneak peek of Piper dancing. Nana loves you, Sweethearts!
Robbie Marie
So, my camera battery died and I only got a few pictures of the first Halloween party of our day and not ONE of the second party, darn. (I’m sure it had nothing to do with the fact that I took 200 pictures in Estes Park last week…)
The Key Club at Arapahoe High School puts on Halloween party and Easter egg hunt each year for Denver area children with Down syndrome and their siblings. The event was well planned and students had different activities in about 25 decorated rooms for the children to interact, play and discover in. A great time was had by all!
The Girl Scouts made S’mores for the Trick-or-Treaters, but Piper was satisfied with the graham cracker!
Piper kicked balloons and tossed bean bags …
AND, she met Burt in person! Any doubt she had about him being the real Burt was decided after thoughtful inspection. He was an imposter!
Piper saw someone inside those eyes and wanted to get this situation sorted out right here and now! The high school student was very patient as intrigued Piper investigated the guise. She kept a close eye on Bernie after that.
Thanks Arapahoe High School. The event was a hit and brought a lot of joy to a bunch of great kids!
See you next year!
Robbie Marie
This is an awesome month! Loads of bloggers will be posting all month long about Down syndrome. It is a great opportunity to share what Ds IS, as well as what it is NOT!
Being a grandmother of a absolutely darling child that is short, smart, funny, polite (I could go on and on here you know) whom also just happens to have Down syndrome, I encourage you to visit some of these blogs.
Start off by visiting my daughter's blog, if you like, and meet their family. On the sidebar you will find lots of blogs of other families that also have darling little kidlets with an extra chromosome.
Be prepared, because there is going to be an abundance of cute pictures this month!
Nana loves you, sweet Piper! I wouldn’t change a thing about you!
Today was the Mile High Down Syndrome Association’s annual “Step UP for Down Syndrome” walk in City Park, Denver.
Whew! It is over for another year! What a fun time with family and friends we had today! It was a perfectly lovely fall day and the company was just grand! We walked the 2 miles then visited under our canopies, had picnics and played with the children.
Before the walk started, everyone with Down syndrome was invited to bandstand for a big group picture. My daughter, son-in-law, and hubby were at the truck unloading, so Piper and I went up for the picture. Everyone was there and clapping and getting ready for the walk to begin. I took Piper up and left her with the other kids; she turned around and looked at the crowd clapping and assumed they were clapping for her! She was simply delighted with all the attention she was getting! Her bright yellow hair and blue walk t-shirt glowed in the morning light. Everyone was laughing at our cute little munchkin standing out in front. It was a great start to a great day!
